Mashawna ThompsonвЂ™s child, Lyra, arrived to the whole world with frequently skin that is pale a full mind of nearly-transparent locks. By all measures, she had been breathtaking. Then again Mashawna experienced that minute that every brand new moms and dads fearedвЂ“the medical practioners suspected that one thing had been вЂњwrong.вЂќ Finally, infant Lyra had been identified as having albinism.
Lots of people are not really acquainted with the expression вЂњalbinism,вЂќ but everybody has been aware of вЂњalbinos.вЂќ And that’s only the tip associated with iceberg of misunderstandings.
While Lyra, that is now a thriving 9-year-old, has many real challenges as a result of her condition вЂ” she’s bad vision, light sensitivity, and painful and sensitive epidermis вЂ” the obstacle that is greatest that this household has faced happens to be the multitude of misunderstandings that individuals have actually about albinism.
In accordance with Mashawna, whom blogs at Parent of a young child With Albinism, вЂњIt really bothers me when individuals simply stare, which occurs A LOT. luckily, quite often Lyra canвЂ™t see good enough to see them staring at her, therefore it does not bother her just as much. I might much rather individuals enquire about it than simply stare.вЂќ
She also had a t-shirt created for Lyra that says вЂњI became created along with itвЂќ in the front and вЂњYes, it is realвЂќ on the back. вЂњBy far, probably the most question that is common hear is вЂIs that her genuine locks color?вЂ™ вЂќ describes Mashawna.
As well as stares and questions regarding LyraвЂ™s locks color, Mashawna has seen the negative stereotypes in the news as well as the dehumanizing connotations from the term вЂњalbino.вЂќ Mashawna claims that, вЂњOn a few occasions, other children have actually called Lyra a vampire or said вЂAre you a vampire?’вЂќ